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An observation, longitudinal, prospective, long-team registry of patients with hypophosphatasia-Alexion HPP Registry ALX-HPP-501

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An Observational, Longitudinal, Prospective, Long-Term Registry of Patients with hypophosphatasia

ClinicalTrials.gov ID NCT02306720

Sponsor Alexion Pharmaceuticals, Inc.

Information provided by Alexion Pharmaceuticals, Inc. (Responsible Party)

Last Update Posted 2024-09-19

Study Overview

In this prospective, observational, long term registry patients of all ages with a diagnosis of hypophosphatasia (HPP) are followed at participating sites in multiple countries.

Detailed Description

The HPP Registry is an observational, prospective, long-term registry designed to collect data on HPP epidemiology, disease history, clinical course, symptoms and burden of disease from patients of all ages who have a diagnosis of HPP.

Evaluation of safety and effectiveness data in patients with HPP who have/are receiving treatment with Asfotase alfa